Ellada successfully completed her sanatorium treatment!

Ellada was two years old when her parents noticed a change in her behavior. Without hesitation, her concerned mother took her to the pediatrician. The girl was prescribed an MRI examination of the brain and blood tests, including genetic tests. Thus, the diagnosis of “multiple sulfatase deficiency with ichthyosis” was established. This is a rare complex genetic progressive pathology that leads to deformation of bones and joints, severe neurological disorders, physical and mental retardation. The skin of Elladas turns into scales and peels off greatly, causing not only discomfort, but also pain. Medicine can only offer special nutrition, physiotherapeutic procedures and ongoing skin care products that slightly alleviate Ellada’ condition. Annual procedures at the sanatorium bring great benefits: specialized massage, special water and mud procedures. You and I can help the family take the girl to the procedure and relax a little with her.