Roma was born last November yet he couldn't be brought home until late August. He spent those nine months in hospitals recovering from five surgeries. The boy had a large non-working intestine fragment removed and had eye surgery, too. Hence, Roma’s hospital stay was much longer than desired.
The Children's hospice helped organize his hospital-to-home transfer. Roma’s parents learned how to properly care for their son. Nevertheless, the long-awaited arrival would not have taken place without the medical equipment. That’s why oxygen concentrators, aspirators, volumetric infusion pumps, and a syringe driver were delivered and set beforehand. Roma needs them because of his health. And it is indispensable.
Roma has short bowel syndrome and serious concomitant diseases. He gets parenteral (i.e. intravenous) nutrition. A tracheostomy tube inserted in his neck helps him breathe. Infusion therapy—nutrition, medications, and customized solutions—is administered round-the-clock. Roma grows and gains strength. He even eats porridge but in a rather unusual way. It is injected through a syringe.
Children’s hospice employees, namely a pediatrician, a respiratory physician, a special needs nanny and a coordinator regularly visit the family. Roma usually rejoices while seeing new adults. He looks at them smiling and waiting for them to play. In fact, Roma began to smile more often when he got home. As it turns out, he prefers to sleep next to his parents not in his crib. Now Roma often goes for a walk. His parents must take a portable oxygen concentrator with them, it is a medical requirement. One may say this is the first autumn of Roma’s life. And he finally got acquainted with it.
However, Roma is still in poor health. Medical equipment is used routinely so his family must have its own pieces. Besides, there has to be medical equipment supplies. We need to raise ₽835,778 so Roma lives at home not hospital.
