Matvey Karmanovsky from Torzhok has spinal muscular atrophy. This is a genetic disorder that leads to muscle weakness and then to complete atrophy of all muscles in the body. Matvey was lucky, he has the rarest type III. This means that he weakens and loses skills slower than others.
Matvey is being treated with "Spinraza" - the only registered in Russia drug against SMA. The result is impressive. Now the boy has every chance of becoming an absolutely healthy child! He just needs to continue treatment and exercise daily.
Thanks to the support of 583 Tubers, Matvey got the Galileo vibration platform. The simulator works like a swing with a variable frequency. Depending on the settings, it swings from 12 to 30 times per second. During exercise, all muscles involved in maintaining an upright position of the body are involved. Blood circulation and metabolism improve, coordination of movements and balance are trained.
With such simulator, it will be easier for the boy to defeat the disease!
“Our family is immensely grateful to the Tooba platform and to all caring people! We couldn't have done it without your help. It is very pleasant to realize that in our difficult times there are people who are ready to lend a helping hand. We believe that everyone who does deeds of mercy will certainly receive a good reward in his life, ”- the Karmanovsky family.
