When a child has tyrosinemia, he should not eat ordinary foods! It can lead to irreparable consequences. Tyrosinemia is a rare hereditary disease in which the body lacks enzymes. Sooner or later, it leads to failure of the entire body, cirrhosis of the liver, and sometimes death. The story of 11-year-old Temirlan Surkhayev from the small Chechen village of Kurdyukovskaya is stunning.
When the boy was two years old, his parents noticed that his gait had changed and that his belly had enlarged. The baby was diagnosed with rickets and underwent a very painful surgery to dissect the bones on both legs. But it didn't help. Soon the baby stopped walking altogether. Both hips were operated on. After that, the boy could no longer turn over, lost his appetite and never smiled. The inconsolable mother constantly carried him in her arms. And to school, too. But the child was melting before her eyes. It wasn't until he was genetically analyzed and diagnosed that everything began to fall into place. It turned out that the surgeries were not only useless, they weakened and traumatized the child! And what he needed was drug therapy and a special protein-free diet! Now Temirlan is taking medication and he is much better. He walks on crutches, goes to school, and his face now often smiles. But he, like all children with this disease, needs a lifelong low-protein diet. And this is a big problem for families with such children. In Russia, low-protein products are produced by only a few manufacturers, and such products are not cheap.
With your help, we can help ten families from Chechnya provide special nutrition for children with tyrosinemia!
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