Vova passed the most important test

Redkie Deti

Foundation Chelyabinsk region

At the end of last week, the rare Vova passed the most important test of his life - whole genome sequencing. He will show existing defects in genes and tell doctors tactics to work with the boy. The blood draw went well, neither Vova nor his mother lost their composure, and even smiled. To everyone who donated to collect the rare Vova, Thank you. You helped take a big step towards medical clarity, which Vova has been waiting for for eight years. It's good to have you around!

Report

Campaign information

Vova needs a genetic analysis to get timely help

The rare Vova has been a ward of our Foundation for several years. He loves sticks, cars and pranks like all boys, just like all children he does not like homework and school obligations. Vova could be called an ordinary child if he did not have fragile skin, unusual growth and medical questions to which his parents, together with a geneticist, are looking for answers. Vova is a butterfly boy, it is now unknown whether his breakdown occurred spontaneously or was inherited, it is unknown whether there are other life-threatening genetic breakdowns, whether the boy’s growth is associated with them and what to expect next. We are raising funds for an important genetic analysis that contains answers to all doctors' questions. It is like a book that is very important to read on time, only in this case it is possible to adjust the quality of life. This is necessary so that the child can receive timely help and learn to live with rare genes. The most effective correction of the disease always occurs in childhood, so that doctors have time to help, Vova needs your help.

Donors

614
Эдипов тамарин

Эдипов тамарин

6 347 ₽ • 2 years ago

Наиля Хисматулина

Наиля Хисматулина

50 ₽ • 2 years ago

Ilyas

Ilyas

30 ₽ • 2 years ago

Дельмарвская черная белка

Дельмарвская черная белка

500 ₽ • 2 years ago

Лисица ПустыннаяБурый МедведьЗабайкальский солонгойВо Благо ❤️🫂
614 helping

Comments

1
Сайгибат
Сайгибат2 years ago

Пусть Аллагь поможет 🤲🏻

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