The rare Vova has been a ward of our Foundation for several years. He loves sticks, cars and pranks like all boys, just like all children he does not like homework and school obligations. Vova could be called an ordinary child if he did not have fragile skin, unusual growth and medical questions to which his parents, together with a geneticist, are looking for answers.
Vova is a butterfly boy, it is now unknown whether his breakdown occurred spontaneously or was inherited, it is unknown whether there are other life-threatening genetic breakdowns, whether the boy’s growth is associated with them and what to expect next.
We are raising funds for an important genetic analysis that contains answers to all doctors' questions. It is like a book that is very important to read on time, only in this case it is possible to adjust the quality of life. This is necessary so that the child can receive timely help and learn to live with rare genes. The most effective correction of the disease always occurs in childhood, so that doctors have time to help, Vova needs your help.
Пусть Аллагь поможет 🤲🏻