Redkie Deti

Children with rare genetic diseases are inextricably linked to federal medical centers, where the greatest experience in diagnosing and treating these conditions is concentrated. This spring, four of our rare children are flying to seek help that can't be found closer to home.

One trip is to correct the hormonal balance associated with the ultra-rare mutation the child has had since birth. The…

Maxim has a rare skin disease, due to which his skin is so fragile that it needs constant protection. This spring, Maxim received another difficult diagnosis - renal amyloidosis. It is impossible to cure it, however, thanks to a special medicine, it is possible to maintain normal blood counts.

Obtaining this medicine under compulsory medical insurance is difficult; the child is not always…