The butterfly girl Sumaya was born with a rare hereditary disease - epidermolysis bullosa. The diagnosis confirms a genetic malfunction in which the skin becomes fragile, like a butterfly's wing, and is injured by light touches and even affectionate hugs.
Despite the high risk of extensive wounds, the active Sumaya does not sit still. After drawing, she runs outside to play, and then happily constructs from cubes and prepares for school.
Conventional bandages are not suitable for patients with epidermolysis bullosa. Long-healing wounds require the most gentle care. High–tech bandages and skin care products required every day are vital for people with this incurable disease. They literally save patients, prolong their lives and give them the opportunity, as far as possible, to comfortably do business and have hobbies.
A family alone cannot handle such impressive sums. Let's support the butterfly girl together!
