The funds raised for Emilia helped other children.Verified by Tooba

The funds raised for Emilia helped other children.

Charity Fund "Zhuldyz"

Charitable foundation · Kazakhstan

collected
of KZT 3,700,245

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Emilia Kerimbayeva needed help, age - 3 years, diagnosis – spinal muscular atrophy of - SMA. One injection was required, which would block the broken gene, and allow Emilia to live and develop like all her peers. During the next examination, it turned out that the diagnosis of SMA turned out to be erroneous and the parents decided to transfer the collected funds to other wards of the Zhuldyz foundation. This money was used to pay for treatment: • Nurhat Kaldybai, 15 years old, diagnosed with acute leukemia • Kairat Nurbergen, 6 years old, diagnosed with achondrodysplasia • Yersultan Raybekuly, 2 years old, diagnosed with retinopathy of prematurity. Of the collected amount, the remaining balance in the amount of 207,624 tenge was transferred to the statutory purposes of the fund. In July 2022, the collection for Emilia Kerimbayeva was closed. Thank you to everyone who took part in these gatherings, health and well-being.

About the campaign

One injection is one life for Emilia

Little Emilia's health depends on one shot of Zolgensma

Two-year-old Emilia has a rare genetic disorder called spinal muscular atrophy. With SMA, muscles atrophy and the child loses the ability to sit, crawl, walk, swallow and breathe.

Emilia needs the drug Zolgensma, which can save her life, which costs $2,234,031 (one billion tenge). The drug is not registered in Kazakhstan and treatment is impossible. Her parents have started a fundraising drive to have their daughter treated at the UCLA clinic in California.

The Zhuldyz Foundation is raising funds for Emilia's treatment.

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Charity Fund "Zhuldyz"

Charitable foundation · Kazakhstan

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