Patimat has a genetic disease with a complication. A gastrostomy tube has been delivered to her!

Patimat is 13 years old, but she looks younger. The cause is a severe form of epidermolysis bullosa, a rare genetic disease affecting the skin and mucous membranes. With this course of the disease, due to wounds in the mouth, it is difficult to chew and swallow food, the esophagus narrows due to scars, and the body does not absorb nutrients and trace elements well. All this leads to protein and energy deficiency, which results in delayed physical development. The only way to organize proper nutrition, avoid exhaustion and maintain the body in a stable condition with this development of the disease is to install a gastrostomy, a special tube connecting the stomach to the anterior abdominal wall. In order for the girl to receive adequate nutrition, special supplies and a gastrostomy tube are needed. In her case, it's a vital necessity. Let's support the Patimat! Your help will provide her with the opportunity to eat well - it not only accelerates wound healing, but also allows the body to grow and develop according to the calendar age.