Alexey was always a healthy boy—full of energy and curiosity. He loved riding his bike, playing active games with his friends, and going fishing. But everything changed suddenly when he turned seven.It started with strange sensations—like his ears were popping. Medical exams showed nothing abnormal. But one of his teachers remembered seeing a similar case and suggested that his mother consult an epileptologist.
That visit revealed the truth: it was the beginning of epilepsy. The seizures became more frequent, more intense, and harder to control. Now Alexey experiences up to 15 seizures a day. He loses his balance, falls, and gets hurt. Medication hasn’t been able to stop the seizures. Alexey is still going to school, but the frequent seizures affect his memory and cause setbacks in learning and development—for a child who was recently doing so well.
It’s now crucial to understand the cause of his epilepsy in order to find the right treatment. To do this, Alexey needs whole genome sequencing—a comprehensive test that can help identify the root of the condition and guide doctors toward an effective therapy. Up to 70% of people with epilepsy can live full, healthy lives when given the right treatment. Let’s help Lesha get that chance.
Verified by Tooba
Verified by Tooba
