Stas is an orphan with a rare genetic disorder. Only three years ago, doctors managed to decode the boy’s genome and find the right treatment for him. It stopped the disease from progressing, but unfortunately, it's not a magic pill — Stas requires regular pump refills, certain medications, and most importantly, rehabilitation must never stop.
Therapy helps both his spine and muscles to keep his body in an upright position — something that once seemed impossible. Before starting treatment, Stas had nearly lost all his motor skills completely. Now, Stas can sit up, moves around in a wheelchair, loves reading, is learning, and even helps caregivers make pancakes at our Social Center.
To ensure the boy doesn't lose his active abilities, he needs a course of rehabilitation and treatment accompanied by a caregiver. Let's help Stas live a full life!