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You helped Vasya learn about his health!

Bereginya

Charitable foundation · Perm region

collected

of RUB 46,789

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Thanks to your support, Vasily underwent cardiac genetic testing (the "Hereditary Heart Diseases" panel). Fortunately, no mutations characteristic of long QT syndrome were detected! This means Vasily can return to his beloved sport of skiing! He has already resumed training and is preparing for the ski season. A recent examination (a treadmill electrocardiogram) showed excellent results.

Your support allowed us to rule out a dangerous diagnosis, restore Vasily's ability to play sports, and move him closer to new victories! Thank you for your generosity!

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About the campaign

Vasya has a rare disease, he needs a test to prescribe treatment

On the surface, Vasya appears to be a perfectly healthy teenager, but in reality, he has a rare genetic condition that affects his heart's functioning. This revelation came as a surprise, as Vasya has been involved in skiing since the age of seven. However, prior to a recent competition, he was denied entry due to his low heart rate and was referred for a medical examination. During the examination, it was discovered that he has long QT syndrome, a rare genetic condition that had gone unnoticed.

Vasya is faced with a choice: to leave sports due to a disease that could be serious, or to try to understand the causes of the illness and find a way to cope with it. To do this, he needs to undergo a genetic examination, the "Hereditary Heart Diseases" panel. This will help him understand what caused the disease and how to treat it.

Vasya's mother is raising him alone and cannot afford to pay for the examination. This puts the young athlete's future at risk, as without a clear diagnosis and understanding of the causes of the disease, he will not be able to continue his sports safely.