A couple of months before his birth, Misha was diagnosed with Ebstein's anomaly and pulmonary atresia. Simply put, the boy is missing one ventricle of his heart. He underwent two heart surgeries almost immediately after birth, and several more over the years. After the surgery in 2021, the child's face became distorted, his arms became paralyzed, and he stopped speaking even the smallest syllables he could.
Furthermore, Misha developed epilepsy, and other brain defects were discovered. Despite all the difficulties, the family never despaired and continued to actively support their son's development, regularly attending specialized classes. Speech therapy massages and classes at a rehabilitation center bore fruit: gradually, his face began to smooth out, and his fingers began to grasp toys. Due to the uncertainty surrounding the diagnosis and the nature of Misha's illnesses, in Moscow, he was recommended to undergo in-depth genetic testing—genome sequencing. The results of this analysis will help determine a precise diagnosis and prescribe appropriate treatment.
The cost of the test is high, and the family already faces numerous expenses related to Misha's condition. So, they're asking you, Tubers, for help in paying for this important test! Please support Misha!
Verified by Tooba
Verified by Tooba
