In his free time, eight-year-old Orjan likes to ride a scooter and play the tablet. The boy likes mathematics and enjoys building Lego figures. He has already chosen his future profession - he plans to become a policeman. But now Orjan dreams to get better and come home soon.
The boy showed the first signs of illness at the age of one and a half, when the family lived in Azerbaijan. Parents brought their son to Russia for examination, where five months later the boy was finally diagnosed with beta-thalassemia, a hereditary blood disorder.
The treatment did not help. For the choice of further therapy tactics, the parents turned to the clinic named after R. Gorbachev in St. Petersburg. R. Gorbacheva clinic in St. Petersburg. Doctors gave the boy a full examination under hospital conditions and appointed a bone marrow transplant. The donor will be his father.
Orjan needs the drug Jakavi (Ruxolitinib) to reduce the risks of donor cell rejection. One pack is enough to start therapy.
