Since childhood, Vasya is not interested in toys, but in the structure of the world: he enthusiastically dismantles remotes, examines sockets and does not give up if something does not work out. His pajamas with cars are the only uniform he needs for daily research.
Vasya has a rare and dangerous syndrome IPEX, when his own immune system attacks the body. He never played with other children on the playground, he doesn't talk much, and he's very thin.
His mother, Nastya, believes in him with all her heart. She dreams that one day he will go to school and run to her with his backpack.
Vasya needs a bone marrow transplant. In the meantime, he is living on the expensive drug "Orencia," which is keeping his disease at bay. Without it, he would experience worsening symptoms and pain.
Tubers, let's help this little researcher reach his ultimate goal of living pain-free. Every donation you make is a step towards making sure that Vasya can just be a healthy child.
Verified by Tooba
Verified by Tooba
