This boy's name is Daniil Shamsutdinov. For an eight-year-old graduating from second grade, he is precocious beyond his years. And his hobbies match - he became interested in natural sciences and loves chemical experiments.
It's just scary to even think about doing some experiment on your own.
Even simple experiments are not the safest activity for children, and Danila has very fragile skin.
He has the most severe form of epidermolysis bullosa, dystrophic. His skin, in fact, is not able to protect him - and any inaccurate touch can lead to injury: a small bubble first appears on the skin, which turns into a wound.
Therefore, you have to hide the vulnerabilities behind bandages. They cover almost the entire body of the boy. Daniel needs constant protection and special care, which means that bandages, creams and balms are always needed. Medication allows the child not only to devote himself to what he loves and to explore the world around him - but also to do things that seem ordinary to us.
You need to collect a little more than 180 thousand rubles. They will go to special binders: ordinary ones will not work, they stick and come off right with the skin. We need those that will not only keep the boy's skin intact, but also allow it to breathe. And also for skin care products designed for people with EB. These are unique and expensive medicines - but with your help, the Foundation team will be able to purchase and send Daniel a box with everything he needs.
