The twin brothers Kamal and Kalimulla are 3 years 10 months old. They were born in Dagestan, and it took them a long time to get a diagnosis. For a year and a half, the children were in and out of hospitals, thin, weak, and in pain. Later, these symptoms were joined by neurological disorders and vision problems. They began to examine the children for genetics, and then it turned out that both boys suffer from a severe inherited disease - Zellweger syndrome. The course of the disease is extremely severe, the entire body is disturbed, and the only way to help the boys at the moment is to treat them with Cholic Acid medication. The medication is not produced in Russia, it is very expensive, for two children a monthly course would cost several million rubles, and it must be taken for life. The family submitted documents to the Ministry of Health to provide the drug at the expense of the budget, but they have not started to give it yet. We managed to collect the money for a two-month course of treatment through the joint efforts of charity providers and the Tuba platform, and the children were able to begin saving the lives of the children, albeit with a delay. Luckily, the medication suited the children, no complications were observed and there was even a slight positive trend, but the boys are running out of medication, and the Ministry of Health has still not responded. The "Life as a Miracle" Foundation increased the amount collected to buy 23 more bottles of the drug so that Kamal and Kalimulla could complete the three-month course of therapy and the doctors could evaluate its effectiveness. With your help we can buy 2 more vials of this expensive medicine!
