Shamil has cardiomyopathy and chronic heart failure. His heart is not working properly, his rhythm is disturbed, and his chambers are enlarged. Even ordinary running or active play ends in shortness of breath and blue lips.
When Shamil was one year old, doctors heard a murmur in his heart. Since then, he has undergone constant examinations, but the cause of the disease has not yet been determined. To find out, a complex genetic test needs to be performed. If the results show that there is a ‘breakdown’ in his genes, doctors will select a lifelong therapy. If there is no ‘breakdown,’ there is a chance to stop the disease.
Shamil now attends kindergarten, has friends, and enjoys building with Lego and constructing machines. Shamil also loves football, but sports are off-limits for him. He watches matches on television and often asks his mum if he will ever be able to play himself.
We are raising money to pay for genetic testing so that Shamil can receive the right treatment and have the opportunity to live a full life. Please support him!
