Usmon has a severe hereditary blood disease and needs medication

Usmon Isoev is two years old and has a severe hereditary blood disorder, beta-thalassemia. This disease deprives the body of the ability to produce adequate hemoglobin. Usmon has required constant blood transfusions since infancy. But this is a temporary measure. The only chance to overcome the disease is a hematopoietic stem cell transplant. To help Usmon, doctors must carry out complex preparations. Due to numerous transfusions, antibodies have accumulated in the boy's blood that can reject the donor cells. To prevent this, the boy vitally needs the drug Jakavi. This medication greatly increases the chances of the new bone marrow engraftment. Firuz's mother is raising four children alone. His father works abroad, and his income only covers the basic needs of the family in St. Petersburg. After years of hospital stays, intensive care units, and the struggle to save Usmon and his brother, who also has the same diagnosis, the family's financial resources have been exhausted. This collection will help children take the most important step on the road to recovery and give them a chance at childhood.