Verified by Tooba

Thanks to you, children with incurable diseases have received a supply of gastrostomy tubes!

Anya Chizhova Foundation

Charitable foundation · Chuvash Republic

collected

of RUB 181,871

Report ready

Donate to other campaigns

Report

With your help, we purchased gastrostomy tubes for Masha and four other children with severe medical conditions. These tubes provide a safe way for them to receive nutrition every day. The children cannot eat regular food; chewing and swallowing are difficult for them, and standard food is not properly absorbed and leads to complications. The gastrostomy tube delivers specialized nutrition, water, and essential medications directly into their bodies.

Gastrostomy tubes require careful maintenance and scheduled replacement. Over time, the materials wear out, and failing to replace them on time increases the risk of irritation and infection.

For families already providing daily care for severely ill children, purchasing these tubes places a heavy financial burden on them. Thanks to you, Masha and the four other children have received a supply sufficient for several months.

Now, their parents no longer have to worry about where to obtain these vital medical devices. Thank you!

Download pdf report

1.5 MB • 2 pages

About the campaign

Masha and other children with serious illnesses need gastrostomies!

In 2018, Masha was diagnosed with Niemann-Pick disease type C. This disease causes fats (lipids) to accumulate in cells, affecting the liver, spleen, and brain, causing severe impairment. Despite all the difficulties, Masha remains a bright and kind person who continues to smile at the world.

She is the soul of the family. Her loved ones admire her strength and positivity. Masha loves cartoons, calm music, and the attention of her family. She is especially happy when her sister returns from school and when they speak to her tenderly and kindly.

Masha is currently fed through a gastrostomy tube and requires special nutrition to avoid complications. The gastrostomy tube needs to be changed regularly, and consumables are constantly needed to ensure safety and prevent infections. Scheduled replacement is also necessary due to wear and tear of the materials.

Unfortunately, consumables are very expensive, and parents often cannot afford them. Therefore, Masha and other terminally ill children need our support! Let's join forces and help raise funds to purchase necessary supplies!