Ksyusha underwent an expensive genetic studyVerified by Tooba

Ksyusha underwent an expensive genetic study

Sodruzhestvo

Charitable foundation · Moscow

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of RUB 118,899

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Kseniya is 10 years old; she is a cheerful and intelligent girl. She is in the 3rd grade of a special needs school, and studying is difficult for her: Kseniya gets distracted quickly and finds it hard to concentrate. She also needs adult assistance with self-care and daily living activities.

In January 2026, the family faced the diagnosis of epilepsy: the girl had her first seizure with convulsions. She was prescribed treatment, and the seizures subsided. Now, following the doctors’ recommendations, Ksyusha underwent genetic testing—whole genome sequencing. This analysis will help find the exact cause of the disease and properly adjust her treatment.

About the campaign

Ksenia has developmental delay and epilepsy, she needs genetic testing to find the right treatment

Ksenia is 10 years old. She was born a healthy girl and developed according to her age, but she started talking late, and her first words appeared only at the age of 3. Doctors diagnosed her with mental retardation.

Ksenia started attending kindergarten at the age of 4. Despite the efforts of her parents and specialists, the diagnosis did not change by the age of 7, and she started attending a special education school. She is currently in the second grade, but she finds it difficult to concentrate and stay focused. She also needs help from an adult in self-care and everyday life.

In January 2026, the family faced a new diagnosis of epilepsy: the girl had her first seizure. She was prescribed treatment, and the seizures subsided. However, in order to find the exact cause of the disease and properly adjust her therapy, Ksenia needs to undergo a genetic test called genome sequencing.

Despite this, Ksenia remains cheerful. She enjoys going for walks, sculpting, visiting museums and theaters, and spending time with her family. Help the girl get the right treatment and a stable future!

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Sodruzhestvo

Charitable foundation · Moscow

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