Violetta has a rare genetic disease and needs to be examined to determine treatment

Sodruzhestvo

Foundation Moscow

Violetta was born healthy and developed according to her age. However, at the age of 1, she suddenly experienced her first epileptic seizures. She was admitted to the hospital, where she underwent a comprehensive examination. After a genetic analysis, she was diagnosed with Tuberous Sclerosis, a genetic disorder that affects multiple organs, including the brain. Violetta is almost 3 years old, but she is unable to fully develop and attend kindergarten due to her daily seizures. She also sleeps excessively due to her weakness. She doesn't understand spoken language and doesn't speak. But her parents don't give up and are looking for ways to help their daughter. The girl regularly attends developmental classes, enjoys going for walks, interacting with children, and playing with animals. She has a best friend, a dog named Rick. She shares food with him and communicates in her own language. Now doctors insist on conducting a multi-day video-EEG monitoring, which is necessary for the correct selection of operative treatment of this lovely girl. This will give the opportunity to Violetta to get rid of seizures and will facilitate the course of the disease.

Report

The charitable fund is preparing the report

Donors

479
Чибис

Чибис

50 ₽ • 18 days ago

О Умма Пора Действовать

О Умма Пора Действовать

512 ₽ • 18 days ago

Пятнистый Дятел

Пятнистый Дятел

500 ₽ • 18 days ago

Юля

Юля

100 ₽ • 18 days ago

Африканский ЛевСеверный ЛосьДлиннохвостая ШиншиллаМорская Косатка
479 helping

Comments

5
Илина
Илина18 days ago

«О Всевышний, пусть эта малышка будет в безопасности, пусть всё у неё складывается хорошо, а сердце остаётся спокойным и счастливым».Будь здорова 🙏🙏🙏

6
624 days ago

Пусть у тебя все будет хорошо!

Александра Авад
Александра Авад1 month ago

Будь здорова 🙏🏻

Кенгуру Шоумейера
Кенгуру Шоумейера1 month ago

Будь здорова, солнышко!

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