Violetta underwent a complex pre-surgical VEEG monitoring.Verified by Tooba

Violetta underwent a complex pre-surgical VEEG monitoring.

Sodruzhestvo

Charitable foundation · Moscow

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of RUB 164,358

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Violetta has Tuberous Sclerosis, a genetic disorder that affects several organs at once, including the brain. She is already 3 years old, but she still cannot develop fully or attend kindergarten due to daily seizures, and she sleeps a lot because of weakness. She does not understand spoken language and does not speak.

Violetta has now undergone an important examination recommended by doctors—a multi-day video EEG monitoring, which is necessary for selecting the right surgical treatment and adjusting her medication therapy. This will give Violetta a chance to get rid of the seizures and will ease the course of her illness.

About the campaign

Violetta has a rare genetic disease and needs to be examined to determine treatment

Violetta was born healthy and developed according to her age. However, at the age of 1, she suddenly experienced her first epileptic seizures. She was admitted to the hospital, where she underwent a comprehensive examination. After a genetic analysis, she was diagnosed with Tuberous Sclerosis, a genetic disorder that affects multiple organs, including the brain.

Violetta is almost 3 years old, but she is unable to fully develop and attend kindergarten due to her daily seizures. She also sleeps excessively due to her weakness. She doesn't understand spoken language and doesn't speak. But her parents don't give up and are looking for ways to help their daughter. The girl regularly attends developmental classes, enjoys going for walks, interacting with children, and playing with animals. She has a best friend, a dog named Rick. She shares food with him and communicates in her own language.

Now doctors insist on conducting a multi-day video-EEG monitoring, which is necessary for the correct selection of operative treatment of this lovely girl. This will give the opportunity to Violetta to get rid of seizures and will facilitate the course of the disease.

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Sodruzhestvo

Charitable foundation · Moscow

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