14‑year—old Dasha has a rare genetic disease - the dystrophic form of epidermolysis bullosa. Since birth, her skin is vulnerable: any careless movement causes blisters and erosions that take a long time and painfully heal.
Due to the diagnosis, Dasha, who graduated from the 7th grade, sometimes goes to home schooling. The family is supported by the Butterfly Children Foundation. Thanks to the appropriate care, the girl studies and engages in hobbies: she draws, studies English, collects mosaics and construction kits.
For a full life, Dasha needs daily bandages with special atraumatic bandages — ordinary bandages are not suitable. They create a "second skin" effect, protect against injury and infection, but they are expensive, and the need for them increases with age.
We are opening a collection for the purchase of care and dressing products for Dasha. Support the brave girl in the fight against a rare diagnosis!
Пусть Аллах поможет Даше в лечении 🤲 🙏
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