Vasilisa has congenital occlusive triventricular hydrocephalus. Her parents learned of the diagnosis during pregnancy, but decided to keep their daughter—and have never regretted it. Thus, the family welcomed twins: healthy Anastasia and Vasilisa, for whom every step is a struggle.
Vasilisa only learned to walk at age three, and school proved challenging—so she has been attending a special school since third grade. But she has a huge support system: her sister Nastya, her best friend and loyal assistant.
Vasilisa has already undergone two shunt surgeries. Now she is facing a third—a cerebrospinal fluid shunt (ventriculoperitoneostomy) with the installation of a programmable pump valve—due to her deteriorating condition.
We urgently need help paying for a Strata valve for an implantable bypass system—the surgery cannot be performed without it. Please help this girl grow, learn, and enjoy life with her beloved sisters.