Abdullaevs Abdulla and Aishat are butterfly children - these two children are from Dagestan, very different, their characters, their hobbies, their experiences and joys. But they shared a common pain.
They are siblings and have the same diagnosis - epidermolysis bullosa. This is a rare and currently incurable disease. Due to the “breakdown” of genes, the skin ceases to perform one of its main functions - to protect the child. Blisters form at the site of an inadvertent touch, which turn into painful wounds. They must be immediately disinfected and bandaged, otherwise the wounds become easily infected.
Abdullah is 4 years old, Aishat is already 7. It takes twice as much effort, time and money to care for their fragile skin. But despite this, in a close-knit family, they are surrounded by care - and are carried away by the usual children's affairs: they play, draw, watch cartoons, read.
The children need special dressings - soft breathable bandages, silicone pads, non-traumatic wipes, alcohol-free antiseptics. Ordinary bandages will not work - they stick to the skin and come off with it.
Our common help will help children live without pain for two months and enjoy life!
