Vanya has a rare genetic disorder. He needs an expensive medication

Vanya is 1 year old. He has a rare genetic disorder — IPEX syndrome: his own immune system does not protect him but destroys his body. Without constant therapy, the disease is fatal. His older brother Vasya (2 years old) is struggling with the same diagnosis, and the parents thought that the second misfortune would spare them. It didn’t.

Now Vanya desperately needs the drug Dupixent. It’s a special protein that precisely suppresses the signals that cause the immune system to attack the body’s own tissues. This is a chance to stop the attack from within, prevent complications, and let the baby grow at home, not in a hospital ward. The treatment must not be interrupted: the child’s life depends on its regularity. But the amount is unaffordable for a family with two seriously ill children.

Tubers, please help. Let Vanya just live and grow.