Leon has muscular atrophy. An expensive medication is required!

Leon was born on April 2026, in Tashkent—a strong and active baby. However, at just a month and a half old, he suddenly grew weak: he could no longer hold up his head and developed severe shortness of breath. A period of hospital stays, intensive care, medical tests, and a search for the cause ensued. By the time he was two and a half months old, genetic testing confirmed a serious diagnosis: Spinal Muscular Atrophy (SMA) Type 1. Since July 20, Leon has been receiving expensive medical treatment and is already showing positive progress. However, this is a maintenance therapy that must be administered continuously. Today, Leon’s family aims to secure access to the gene therapy Zolgensma and seize the opportunity to change the course of his life. The cost of treatment is immense, so success depends on collective support. Please join the fundraising effort: make a donation of any size, share Leon’s story, and tell your friends and acquaintances about him. Every contribution and every share helps expand the circle of support and brings the fundraiser closer to its goal. Together, we can give Leon a better future!