Rayana has had another course of treatment!

Rayana is 14 years old, she loves to sing and dreams of going to school like all her peers. But the girl's diagnosis allows her to study only at home. She spent almost all of her first year in the intensive care unit. And the next 13 years were spent in hospitals, undergoing tests and surgeries. In Kurgan Rayane had 4 surgery to correct subluxations of the hip joints (bilateral osteotomy) and 2 surgery to restore hearing in Moscow. Her vision is broken, she cannot speak well, she is behind in her physical development. Now she needs another course of treatment. There are three more children in the family, and the family has a hard time travelling outside Moscow for treatment. Rayna's mother hopes very much for our help!