Varya Volkonskaya is only 4 years old, but it is already clear that a creative person is growing. Maybe the artist - Varya loves to draw. Maybe the architect - Varya enthusiastically builds sand castles - in the summer from the usual, and in the rest of the seasons from the kinetic. Or designer - Varina sticker applications hint at an obvious talent.
And the best thing is that Vari has a chance for all this! Yes, the girl has epidermolysis bullosa, an incurable genetic disease that makes the skin extremely vulnerable. But Varya was lucky, as far as one can talk about luck in her situation: she has a simple form of the disease, which gives hope that with age the stratum corneum and epidermis of her skin will thicken, and wounds from any touch will become a thing of the past. Varya will become an ordinary child with minor health limitations.
But for this to happen, today Varya's skin needs careful care and regular dressings with expensive medicines. Dressings take a lot of time, and the mother, in order to distract her daughter, tells Varya her favorite “Fly-Tsokotukha”. More precisely, they tell it in two voices, because Varya knows her favorite poem by heart.
We will help Varya and her family to purchase modern medicines so that the disease develops as favorably as possible and the girl's skin remains intact. It is in our power to make sure that Varina's health allows her talents to be realized.
Маленькая красавица🥰 Выздоравливай!