For his 14 years old, Said Kadirov from Kaspiysk is an excellent chess player - few grown men will dare to play a game with him. Said used to go to the chess club, but recently he had to stop - his health cannot withstand such loads due to the dystrophic form of epidermolysis bullosa - the most severe form possible.
With this form of the disease, not only the skin is affected, but also the mucous membranes, for example, the esophagus, which leads to its narrowing and the inability to eat normally. Such complications are very dangerous and require surgical intervention.
Said practically does not leave the house and studies remotely. After school, he collects Lego and sculpts figures of his favorite superheroes from plasticine. Said does not understand that he could boldly add himself to his plasticine hero: he is no less a superhero, because every day he struggles with a serious illness and does not give up.
Through pain, through many hours of daily bandaging, Said does not lose hope of returning to his beloved chess club.
This is possible if Said's state of health is monitored very carefully, in particular, the wounds are regularly closed with atraumatic bandages, and the boy's vulnerable skin is bandaged with several layers of special bandages to avoid injury.
Let's help Sayid expand the world and get back to chess!
Verified by Tooba
Verified by Tooba
