12-year-old Nastya Koptseva graduated from the 4th grade with only A's, the owner of the Governor's nominal scholarship for outstanding achievements in the field of science and creativity!
Only Nastya has never been to school, she is homeschooled. And she won almost all her competitions and olympiads from home. One of the complications of the dystrophic form of bullous epidermolysis is the fusion of fingers. The girl does everything in gloves! She actually lives in them, they save her hands from the worst-case scenario.
Nastya dreams of becoming the same as her peers. To be able to run, eat not only mashed food, so that there is no pain, so that no one asks why she is always in bandages.
Today, epidermolysis bullosa is incurable, but Nastya's quality of life can be maintained at a decent level. For this, the girl needs special medicines and food.
It is in our power to make sure that Nastya's health allows her talents to be realized!
Аминь
Помоги Всевышний и исцели кожу! Аминь.