6-month-old Sasha spends most of his life in intensive care, but the family is very much looking forward to the fact that soon the baby can be taken home to be surrounded by native faces instead of hospital walls.
Sasha is a “butterfly” and has epidermolysis bullosa (EB), a rare genetic skin disease. But Sasha is a special “butterfly”. Epidermolysis bullosa has subtypes that differ in severity. Among them there is the most severe - a generalized subtype, a borderline form. Genetic analysis confirmed that Sasha had it.
Sasha's life can be made more comfortable: regular skin treatment and dressings help to significantly reduce the risk of infectious complications and relieve pain.
The baby needs care products and special atraumatic dressings with sponge and silicone coatings - only they can slow down further skin damage
It is very important that Sasha's family get help as soon as possible.
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Пусть ВСЕВЫШНИЙ бережёт тебя, кроха🙏🤍
Пусть Всевышний тебе поможет 🤲🏻