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Children with epidermolysis bullosa were examined and received the prescribed treatment!

Deti-babochki

Charitable foundation · Moscow

collected

of RUB 485,607

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Epidermolysis bullosa is a genetic skin disease, unfortunately, incurable. It is vital for wards to arrive on time for examinations and treatment adjustments under the "Hospitalization" program in order to avoid complications of the disease (finger fusion, joint deformity, negative effects on internal organs, mucous membranes, etc.).

Thanks to your help, we were able to provide assistance to 18 wards of the foundation! They received treatment from the best federal experts on their disease.

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About the campaign

11 children with epidermolysis bullosa need to be examined and treated in order to more easily tolerate the consequences of the disease!

16-year-old Vitya has a dystrophic recessive form of epidermolysis bullosa and a severe course of the disease. This genetic skin disease is currently incurable, but with strict adherence to the care regime and competent dressings, which patients need daily, timely hospitalization and systematic examinations, it is possible not only to prolong life, but also to delay possible disability (finger fusion, joint deformity, etc.).

However, the manifestations of this disease are not only external. Epidermolysis bullosa has a negative effect on internal organs, mucous membranes, body systems, and causes multiple caries.

Victor and ten other wards of the Butterfly Children Foundation need to undergo examinations and prescribed treatment.

Together we can help these children!