Without special bandages Egor Nechiporuk, who suffers from bullous epidermolysis of dystrophic form, every day suffers the pain of which a child in a year and a half simply should not know. Even from the familiar to each of us touch, the boy's skin is damaged. Imported dressing materials serve as a kind of case, protecting from the environment. Only to buy suitable dressing materials and medicines you need from 50,000 to 400,000 rubles per month.
Egor's life began with resuscitation, because he suffers from a rare genetic skin disease, about which doctors from his native village near Tver know almost nothing. There are only a few children with this diagnosis in the region. Because of bullous epidermolysis, the boy was born skinless on his feet and some parts of the body, and everything else was covered with blisters, which became more and more every day. Such children are called "butterflies" because contact with any surface can traumatize their thin skin.
Special bandages and medicines help Egor be like all other children. However, bandages take several hours every day: first, you need to carefully separate the old bandages from the skin, then treat the wounds and apply new bandages. And can a child in a year and a half sit still? No. Egor spins and spins like a spinner. Despite the difficult diagnosis, he remains an ordinary child who wants to play, laugh and learn new things.
Egor's parents spend all their savings to make his childhood normal. Only money is still not enough. "Butterfly" needs bandages, medicine, special clothes and special food every month. For a simple family, where in addition to Yegor grow up two more boys, the amount of up to 400 00 to care for only one child - is impossible. They need support so that the boy can grow and develop equally with his peers.
