Every day of her life 14-year-old Rabiyat has to be very strong. The girl has a bullous epidermolysis - a congenital genetic disease in which the skin becomes brittle and comes off even from a light touch. As a result, there are wounds that can get infected. Such things hurt even to read, but this is a familiar reality of a girl and her family.
Daily skin treatment and constant bandages are the only things that will allow Rabiyat to live with fewer doctors and hospitals. And we need special bandages - soft, breathable, which do not stick to the skin. You need a lot of money for good dressing materials every month - from 50 to 400 thousand rubles.
Unfortunately, doctors who know what is bullous epidermolysis and how to properly care for the skin with such a diagnosis, did not appear in Rabiyat's life immediately.
Due to lesions of the mucous membranes of the mouth, Rabiyat can not eat regular food. She is shown shredded food from certain products - a girl is food allergic to milk, citrus, tomatoes, strawberries. Therefore, most of her diet is made up of special blends - they are delicious, provide the body with essential vitamins and minerals and it does not hurt to swallow them.
Rabiyat learns at home.
Otherwise, she is the same as ordinary children - she loves to draw, sculpt, make handicrafts, watch cartoons. All this is possible when bandages with the right bandages, like a protective cocoon, create a barrier on the delicate skin from the aggressive environment. Special nutrition gives strength and energy. The family spends a large part of their monthly income on buying medicines and nutritious mixtures, but they still do not have enough money.
Another purchase of bandages, ointments and medical formula feeding needs 150 thousand rubles. Without support, these expenses are impossible for the family. The care of her health has fallen on the shoulders of her mother, grandmother and grandfather. The girl lives without her daddy.
Even a small donation will be of great importance and will allow Rabiyat to enjoy life every day.
