Ilya is the fish boy, he has Netherton Syndrome, which is a type of Ichthyosis. This Syndrome is characterized by chronic skin inflammation, bamboo hair, high susceptibility to infections and multiple allergies. Because of this, Ilya's skin has a reddish color and scales that resemble fish scales.
In addition to the syndrome, the child has allergies, which limit the boy's social life and dietary diversity. He has never tried many of the foods we are used to and is unlikely to be able to, all his food must be gluten and lactose free, flavor enhancers and additives, only two types of cereals of a certain processing are safe for Ilya, and there are several dozen such restrictions in his diet.
We ask you to help raise funds to buy safe products for rare Ilya. Together with you, we will cover the food needs for four months and make Ilya's life tastier.
