The family has two children, Kamil and Kamila, and both have been diagnosed with propionic aciduria.
A nurse comes to the family every three months to examine them and provide the necessary assistance. It is important for Kamil and his sister to measure their acid-base balance, so the family regularly went to the hospital.
But recently, due to the high risk of metabolic crises (a dangerous condition that manifests itself in acute encephalopathy, vomiting, and convulsions), the doctor recommended measuring the acid-base balance at home.
For this, Kamil needs a special portable device that will help monitor the level without leaving home. It needs to be measured at least once a month. And also in emergency cases, when symptoms of a crisis occur, because acute changes are life-threatening.
“It’s very difficult as a parent. You think and get nervous, it’s hard to understand what to do if you don’t know how the child feels,” the boy’s father said.
Thanks to the device, the father can monitor Kamil's condition and call a doctor if necessary. So the father can be calm about his son's health.
You can help Kamil right now!
