More than anything, 5-year-old Ayat loves to walk by the river. She descends to the shore by the familiar path and strolls by the water, listening to her melodious splash. She also loves to launch paper boats and watch them being carried away by the fast flow. The girl rejoices and waves goodbye to them.
Ayat can take such a walk only if her parents dress her with special bandages. Otherwise, a mini-trip and even making an ordinary boat can be painful and dangerous for a girl.
Ayat has epidermolysis bullosa. With this incurable congenital disease, the skin is very vulnerable and becomes covered with wounds even from light touches. For example, if a girl tries on a toy ring or turns unsuccessfully in a dream. Wounds must be immediately disinfected and bandaged, otherwise they can become infected and cause serious complications, up to and including skin infection.
Bandages, wipes and antiseptics for such delicate skin only need special ones - soft, breathable, which do not stick to the body and do not burn it. Such special funds are very expensive, but for Ayat to remain without them is like living without skin. That is, unthinkable. Therefore, the girl needs to be bandaged several times a day.
Ayat's parents try very hard to always have the necessary dressings at home, and the girl could live fully and do her favorite things - walking, drawing, dancing. However, they cannot cope with these constant large expenses.
The next purchase of dressings and medicines for Ayat needs 270 thousand rubles. These funds will be enough for the family for about three months of a quiet life. Ayat and her parents will live them without fear, without thinking about illness, hospitals and complications.
Each of you can help the tender Ayat to live without pain.
