You helped Roma undergo rehabilitation

Poter net

Foundation Republic of Bashkortostan

Little Roma worked hard all January: he attended speech therapy and special education, bravely endured unpleasant procedures, and went to massages and physical therapy. All this was to recover from a serious illness and learn to live like normal children. The rehabilitation course was paid for thanks to your participation and support. Thank you for your concern and for helping Roma!

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Campaign information

Roma has a genetic disorder and needs rehabilitation

Roma has DiGeorge syndrome, a genetic disorder that disrupts embryonic tissue development and causes congenital organ defects. He underwent two heart surgeries immediately after birth, and another a few months later. Afterward, the baby couldn't breathe on his own and had a tracheostomy inserted. Roma spent six months in intensive care, during which time doctors tried to find the cause. It turned out that Roma had developed pulmonary hypertension. The prognosis was grim: he would be permanently ventilated and would be unable to walk. In February 2023, Roma gradually began breathing on his own, without the need for a ventilator, albeit with the support of an oxygen concentrator. Speech therapy taught him to swallow and drink water. And last December, a true New Year's miracle occurred – Roma began walking. A few days ago, the tracheostomy was removed, and Roma is now breathing on his own and no longer requires any ventilators. Of course, Roma still needs treatment: another heart surgery and removal of the gastrostomy tube. But first, he needs rehabilitation, as the boy continues to have paralysis of the epiglottis and vocal cords due to the long-term use of the tracheostomy. We are starting a fundraiser to pay for Roma's rehabilitation and ask for your support. Let's help him take another step toward a happy childhood free from hospitals.

Donors

191
Ð

Ð

40 ₽ • 6 months ago

Brat

Brat

440 ₽ • 6 months ago

Ibrahim Dzheby

Ibrahim Dzheby

1 200 ₽ • 6 months ago

Атлантический Синий Кит

Атлантический Синий Кит

50 ₽ • 6 months ago

ДобрякИмя ФамилияМиляуша СадрееваHelp Easy
191 helping

Comments

3
Ghost Toober
Ghost Toober6 months ago

Давайте поможем малышу

Пятнистый олень
Пятнистый олень8 months ago

Все получится, малыш 💫

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