Daniyal has undergone a vital genetic study and consultation with a geneticist.Verified by Tooba

Daniyal has undergone a vital genetic study and consultation with a geneticist.

Sodruzhestvo

Charitable foundation · Moscow

collected
of RUB 130,170

Report ready

Donate to other campaigns

Report

At 7 months, Daniyal was diagnosed with West syndrome (infantile epileptic syndrome) and cerebral palsy.

Thanks to his family's perseverance, the boy learned to hold his head up, crawl, and speak a few words. They managed to achieve remission for 2.5 years. But then the seizures returned. An unsuccessful change of medication set his development back: Daniyal stopped speaking and understanding speech. The seizures now occur during sleep and require emergency intervention.

Behind the diagnoses is a gentle, smiling boy, a big brother to his sister Madina. Recently, Daniyal underwent the genetic testing and consultation with a geneticist that he so desperately needed in order to receive personalized treatment.

About the campaign

Daniyal needs a genetic analysis to find the cause of his illness

Daniyal is 7.5 years old. Born at 34 weeks, he was immediately admitted to intensive care. Doctors ignored his alarming symptoms for a long time. It wasn't until he was seven months old that he was diagnosed with West epileptic syndrome, which was accompanied by cerebral palsy.

Thanks to his family's persistence, the boy learned to hold his head up, crawl, and speak a few words. Remission was achieved at the age of two and a half. But the seizures returned. An unsuccessful medication change set his development back: Daniyal stopped speaking and understanding speech. The seizures now occur in his sleep and require emergency treatment.

Behind these diagnoses is an affectionate, smiling boy, an older brother to his sister Madina. It is now critically important to undergo genetic testing and a consultation with a geneticist. This is the only way to an accurate diagnosis and personalized treatment that can control the seizures and give Daniyal a chance to develop.

The family, who have been paying for the tests themselves for all these years, is asking for help in organizing this vital test.

Recent supporters

Comments

Tooba app

Your donation history lives in the app

Download the Tooba app and do good deeds in three taps right from your smartphone. We unite verified charitable foundations and ensure transparency at every stage - from your donation to the final campaign report.

QR code

Who is collecting

Sodruzhestvo

Charitable foundation · Moscow

More campaigns from Sodruzhestvo

All campaigns