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Muhammad Ali now has a ventilator that helps him breathe!

AiF. Dobroe Serdce

Charitable foundation · Moscow

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of RUB 1,049,127

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Little Muhammad Ali no longer experiences oxygen starvation during sleep. The respiratory function is supported by a ventilator, which you tubers helped to purchase, thank you for your help!

Due to a rare genetic disease, one-year-old Muhammad Ali's nerve cells, which make his muscles work, are rapidly dying. Gene therapy makes it possible to resist muscle atrophy. Muhammad Ali is gradually gaining strength. But the muscles that are responsible for breathing are still too weak. Without artificial ventilation at night, the child's condition may worsen.

"I want to express my deep gratitude to everyone who helped us," says Pope Muhammad Ali. – Our fourth child needs a ventilator. As soon as we got it and set it up, we connect our son to it every night. His breathing is no longer erratic, there is no need to constantly check how he is breathing.

In recent months, Muhammad Ali has grown up and become stronger. He can turn over on his side, clutches a pacifier and his favorite rattle in his hands. He tries to sit on his own and smiles at all his relatives. Thank you for supporting the baby.

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About the campaign

Muhammad-Ali needs a ventilator due to the weakness of his respiratory muscles

One-year-old Muhammad Ali has decreased respiratory function due to a rare genetic disease. The child needs a ventilator to avoid oxygen starvation.

In the first months of his life, his parents began to notice that something was wrong with their son. He was lethargic, ate poorly, and couldn't hold his head up. His condition only worsened with each passing month. When the tests were done, it turned out that the child had spinal muscular atrophy. Due to the breakdown of genes in the child's body, nerve cells that make muscles work are rapidly dying.

Without treatment, the child will not be able to move, eat, or even breathe. Previously, such children did not live to be two years old, but today they are successfully helped by gene therapy. The parents say their son got a very expensive injection in Moscow, which is why his muscles are gradually becoming stronger. Muhammad Ali began to hold his head, his legs and arms no longer hang like whips, he learned to lift them up. But the muscles that are responsible for inhaling and exhaling are still very weak.

At night, parents can hear their son's heavy breathing, and during the day he cannot clear his throat for a long time. Doctors recommended connecting to a ventilator, but a family with four children simply cannot afford to buy an expensive device. Let's support Muhammad Ali so that he can breathe deeply and gain strength. Let's help!