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The help reached the addressee: Abdulvose received everything he needed.

Deti-babochki

Charitable foundation · Moscow

collected

of RUB 341,423

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The collection was successfully closed! Many thanks to all the benefactors — your support is incredibly important!

Thanks to you, Abdulvose has already received everything he needs: anti-traumatic bandages and special care products. For a boy with epidermolysis bullosa, these are not just materials — they are daily protection that helps reduce pain, protect vulnerable skin and minimize the risks of complications.

We know how many difficulties Abdulvose has to overcome: because of the peculiarities of the disease, it is difficult for him to tolerate bright light, it is not easy to be among people, and meals are possible only in a special format. But with all this complexity, he remains a child: he is happy to play with his sister, watch cartoons, scroll through the tape on his phone and sincerely dreams of going to school one day with other children.

Your help is an opportunity to give him more days filled not with fighting pain, but with the usual childhood joys. Thank you for making Abdulvose's childhood a little brighter and calmer! 💛

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About the campaign

Abdulwose has epidermolysis bullosa and needs skin protection

Abdulvose has epidermolysis bullosa (EB), a rare genetic skin disease. With this diagnosis, proteins are not produced that "stitch" the skin layers together, and any awkward movement or even uncomfortable clothing can lead to injury. Because of this vulnerability, patients are figuratively referred to as "butterflies."

In severe cases, the disease affects not only the skin, but also the mucous membranes. Due to constant injuries when swallowing, Abdulvose has a narrowing of the esophagus, he can only eat blended food. The disease also affected the mucous membranes of the eyes: the boy's vision is reduced to 20%, bright daylight causes him pain, sometimes he is forced to stay in a darkened room for several days. It's hard for him to be in crowded places, but at home he enjoys playing with his sister, watching cartoons and sitting on the phone. Abdulvose studies remotely and dreams of going to school like other children.

EB is an incurable disease, but the life of a butterfly can be made easier. For this, special dressings and care products are needed daily. It is a multi-layered skin protection system that reduces pain, the risk of infections, complications, and new damage.

The Butterfly Children Foundation opens a collection for anti-traumatic bandages and care products for Abdulvose. They will help protect his skin, reduce pain, and enable him to live not in coping mode, but in childhood mode.