Denizbek needs special nutrition

Pomosch

Foundation • St. Petersburg

Denizbek Alizhanov, 17, was diagnosed with Lafora's disease. He had his first epileptic seizure at the age of 13, when he was in the 7th grade. Due to his constant seizures, his condition has worsened, causing severe tremors and making it difficult for him to walk without a cane or drink without a straw. As medication did not provide sufficient relief, Denizbek underwent a VNS stimulator procedure. This intervention significantly reduced the frequency of his seizures. At the end of December 2025, the teenager's condition deteriorated rapidly, and he almost lost the ability to walk and speak. As a result, the doctors recommended a ketogenic diet for the boy. A regular diet is not suitable because it does not provide the necessary balance. Specialized nutrition is the only way to stop the progression of the disease and improve the teenager's quality of life. Despite the medical council's recommendation, it is not possible to obtain this food for free. The mother is not working due to her care for a disabled child (the family also has a younger son), and they rely on disability benefits. Let's help Denizbek receive the necessary nutrition and stabilize his condition.