Six-year-old Adam lives in Dagestan. He is a very kind and outgoing boy. Adam has already undergone numerous hospitalizations, injections, and arduous examinations, but he continues to smile and believe in the best.
It all started when he was just one year old: fever, lethargy, loss of appetite, abdominal and joint pain. Regular fever reducers didn't help — only hormonal medication brought relief. Now doctors suspect that Adam has a severe autoinflammatory syndrome. This means his body attacks itself for no apparent reason, but the exact genetic mutation has not yet been found.
To finally understand the true cause of the disease and find the most precise treatment, Adam needs to undergo whole genome sequencing. This expensive genetic test will provide an accurate diagnosis and may help change or strengthen his therapy.
Dear TubeR followers, we are raising funds for genetic testing for Adam and other beneficiaries of the Foundation suspected of having rare immune disorders. Please support our fundraiser!
Verified by Tooba
Verified by Tooba
