Cystic fibrosis is a genetic disease characterized by damage to the external secretion glands and severe respiratory dysfunction. In the case of Arina, this is a pulmonary-intestinal form that occurs with respiratory failure, bronchial asthma, weight loss and polypous rhinosinusitis.
This disease is diagnosed in infancy, but the doctors, who at that time observed a girl, could not make a correct diagnosis, as a result, precious time was lost.
Outwardly, the girl almost does not differ from her peers, except for the fact that she has a special rhythm of life: food and medication are strictly on the clock.
This year the girl is in 9th grade. Arina's hobbies are very different: there was a time, she was engaged in wushu, then she graduated from a modeling agency. She also likes to study - the main thing is that the stories are interesting! Therefore, she was so happy when she went to the solemn line to school: she saw classmates, put on a new uniform. For someone a trifle, but not for Arina. Within a week of September 1, she began to feel unwell and had to return to homeschooling.
For several years, Arina has been taking original, unparalleled drugs. Not all of them can be obtained under compulsory medical insurance, but without therapy with these drugs, the girl's condition will worsen.
Now she needs an antibiotic, 9 packs per course.
Let's support Arina together!
