Purchased 75 cans of medical food for VasilisaVerified by Tooba

Purchased 75 cans of medical food for Vasilisa

Redkie Deti

Charitable foundation · Chelyabinsk region

collected
of RUB 127,719

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Vasilisa has an ultra-rare genetic disease, Stankevich-Isidore syndrome. The disease is multisystemic and causes the failure of several components of the body at once. Poor weight gain, work of the gastrointestinal tract, reflux became the reason for the selection of therapeutic nutrition and contacting our Foundation. Thanks to the Tooba platform, Vasilisa is provided with food for 7.5 months.

About the campaign

Vasilisa has a rare genetic disease. She needs special nutrition!

Vasilisa has a congenital rare genetic disease. The girl spent the first months of her life in hospitals, her diagnoses were changed one for another, until a genetic analysis was carried out and the final one was made - Stankevich-Isidor Syndrome. It includes multiple disorders of the musculoskeletal system, a decrease in intellectual development, including a problem with nutrition and the entire gastrointestinal tract.

Today, Vasilisa needs specialized nutrition that will help close the body weight deficit and solve the problem of reflux. According to doctors' calculations, a girl needs 10 cans of food per month. However, specialized nutrition is expensive and the girl's parents do not have the financial opportunity to purchase it on their own on a regular basis.

However, balanced food intake is important for Vasilisa, because nutrition affects the immune system, helps develop musculoskeletal stability, provides an opportunity for rehabilitation and further development.

Vasilisa spent almost the entire last year in hospitals, we really hope that this year the situation will change for the better, and thanks to your support, Vasilisa's condition will stabilize and she will feel much better!

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Who is collecting

Redkie Deti

Charitable foundation · Chelyabinsk region

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