In the Kalonov family, Amirmohir is the third child, a long-awaited brother as a gift to two sweethearts. The history of its birth is a confirmation that, contrary to all the laws of probability theory, a shell can still hit the same vortex twice. It all started with the fact that one of his older sisters, Yasmina, was diagnosed at a very early age with a severe hereditary disease - Bayler's disease, which is characterized by disturbed formation and excretion of bile in the body. The only effective treatment for this disease to date has been liver transplantation. Yasmina was lucky: she fell into the hands of experienced specialists of FSBI "NIIC TIO named after ac. In 2013, she underwent a successful liver transplantation from a related donor (mother).
Yasmine was already five years old when her mother, then four months pregnant, was tested for genetic diseases in the foetus. The results were disappointing - the baby, like his older sister, inherited Byler's disease type 2. Amirmohir was born in March 2017, and his parents' hopes that by some miracle the disaster would somehow bypass their family have finally collapsed. Diagnosis confirmed.
The doctors tried to delay the surgery as long as they could to strengthen the child's body and prepare it for transplantation. For this purpose, my mother for several months came to the Federal State Budgetary Institution "NIIC TIO named after Ak. V.I. Shumakov" of the Russian Ministry of Health together with two children - Yasmina and her little brother. The donor was not picked up at once, because repeated donation is excluded, so mom could not become a donor for her son, too, Daddy did not come up, but in the end, everything ended well, and in August 2019 Amirmohiru was made a successful liver transplantation from a related donor (uncle).
Now Yasmine is 8 years old, and Amirmohir is 3. The condition of children is stable, they develop like ordinary children of their age. Very funny and active.
In July 2020, moms with children need to come to a control examination at the Federal State Budgetary Institution "NIIC TIO named after Ak. V.I. Shumakov" of the Russian Ministry of Health to adjust the doses of drugs prescribed to them for life indications. Get tested and check liver condition.
The Kalonov family has many children and the family's income is very modest, as one dad works, so it is very difficult for them to raise funds to pay for air tickets and accommodation in Moscow by themselves.
Let's help the family together! Hurry to do good!
