Dear friends! Thanks to your support, Aram can live at home.

Dom s mayakom

Foundation Moscow

More than 1,100 Tooba users made their donations to Aram. Dear friends, we really appreciate your help! The funds we raised will be enough to purchase the supplies for Aram’s medical equipment. Besides, we buy special nutrition, medications, and medical hygiene products for the boy. Aram has spinal muscular atrophy type 1. It is the most common type of a rare genetic disease resulting in progressive muscle weakness. Aram has a lot of critical care items: an oxygen concentrator, portable and stationary suction machines, a nebulizer, and monitoring devices. An ICU ventilator now helps him breathe. In order to work properly, these devices require a stock of the proper supplies. Aram cannot be cured yet it is possible to make his life more comfortable. But most importantly, Aram can live at home with his parents and his younger brother. Despite the severity of his disease, it is feasible, too. We are grateful for the support of the Tooba users.

Report

The charitable fund is preparing the report

Campaign information

Let's help Aram breathe and live at home

Aram was very weak from birth: he hardly moved his legs and hardly moved his hands. This alerted both parents and doctors who treated the boy. After the examination, it became clear that the cause of lethargy was not infection, but a rare genetic disease. Diagnosis of Aram is spinal muscular atrophy of type 1. During SMA, the child's whole body muscles gradually weaken. The first type is the most aggressive. Aram stayed in hospital for a long time, but thanks to the help of the Children's Hospice he was able to be taken home. To the joy of the whole big family, in which Aram is usually called Aramchik. The boy is often put in a special chair so that he can sit next to everyone or watch cartoons. But this year it has become more difficult for Aram to open his eyes and watch his eyes at objects, because the disease is progressing. Now Aram is 5 and a half years old. The boy breathes with the help of an artificial lung ventilation device: his own muscles have long been unable to cope. Through gastrostoy he gets food. In medical terms and procedures, the boy's parents are already understood as experts. They really need to know and know a lot, because it depends on how safe and good Aramu will be. For Aram to be able to live at home, he needs supplies for his medical equipment, food suitable for the boy, medicines and hygiene products. We are opening a collection to buy Aram everything he needs.

Donors

1126
Зубр

Зубр

17 000 ₽ • 5 years ago

Мармозетка Гёльди

Мармозетка Гёльди

70 ₽ • 5 years ago

Кольцехвостый кенгуру

Кольцехвостый кенгуру

2 000 ₽ • 5 years ago

Сайгак

Сайгак

510 ₽ • 5 years ago

Грубошерстный бандикутГорный ОрелБелолобый индри ПеррьераЧёрный хохлатый гиббон
1126 helping

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